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Care coordination

Why women at high risk get lost between appointments

Follow-up for high breast cancer risk lasts decades and crosses many services. The gaps between them are where women disappear.

The HYPHAE team

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min read

Care coordination

A woman found to be at high risk of breast cancer at 30 may be followed for forty years. In that time she will see a genetics service, an imaging department, a gynaecologist, perhaps a breast surgeon, a fertility team and, later, a menopause specialist. Each of them keeps its own record and its own schedule.

Nobody in that chain is careless. The problem is structural: every service is responsible for its own step, and no one is clearly responsible for the gaps between them. A missed recall letter, a scan booked in the wrong month, a change of address or a GP who was never told the plan is enough for a woman to drop out without anyone noticing.

Prevention only works if women stay on their plan, for years.

What coordination needs

• One record per woman that follows her across services and over time.

• A schedule generated from the centre’s own protocol, not rebuilt by hand.

• A worklist that shows who is overdue, and who may be about to be.

• A woman who knows her own next step and who to call.

Programmes such as Unicancer’s Interception, which went national in France in 2026 with personalised high-risk pathways across seven centres, show what organised follow-up can look like. The challenge is to make that organisation hold for every woman, every year.

At HYPHAE we build the coordination layer for exactly this: clinicians set the protocol, and HYPHAE makes sure every step happens and every action is traced.

Run your high-risk programme on HYPHAE

Your protocol, our coordination. See it with your own pathways in a 45-minute demo.

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