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What Europe’s CHOICE project tells us about information for BRCA carriers
An EU4Health project in Portugal, Czechia and Greece is mapping what women with a BRCA variant need to make informed choices.
The HYPHAE team
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5
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CHOICE (Comprehensive Health Options and Information for Cancer Education) is an EU4Health project coordinated by NOVA IMS in Lisbon, with partners in Czechia and Greece. It started in June 2025.
Its early work combines a survey of more than 350 women with a BRCA variant, text mining of millions of online conversations and patient interviews. One finding stands out: information about BRCA exists everywhere, but it is rarely presented as a clear path to follow.
What the project is building
• Multilingual educational materials and a BRCA health-literacy dictionary.
• A virtual library and decision-support tools, including virtual patients.
• Training for health professionals.
• A health-literacy algorithm, exposed through an API for other platforms.
The project also notes that in some countries organised screening starts at 45, too late for many carriers, and that uptake of preventive surgery remains low where fear and missing information dominate.
Why it matters for coordination: good information is necessary but not enough. It has to reach each woman at the right step of her pathway, alongside a plan she can act on.
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What Europe’s CHOICE project tells us about information for BRCA carriers
An EU4Health project in Portugal, Czechia and Greece is mapping what women with a BRCA variant need to make informed choices.